The Week in Review: May 11 – May 18, 2018

Friday, May 18, 2018 News Recap: Canada: Promoting Drug Pricing Policy Resources for Patient Groups. Patient groups in Canada shared in a recent survey that they struggle to understand the complexities of drug pricing policy in Canada and that they would like more information. In response, the Drug Pricing Policy Summit Working Groups have put together two web pages that outline various resources and learning opportunities to help patient groups lea...

What it’s like to grow up with a disease that’s kept secret: ‘I felt unclean’

Every family has secrets. For Lindsay Ventura, her mother, and her sister, the secret was a disease. At first it was something they didn’t even know they had, but when they were eventually diagnosed, they decided to keep it to themselves for years out of fear they would be stigmatized for it. The disease was hepatitis C. In 1990, when Ventura was 3 and her older brother was 5, their father was diagnosed with pancreatic cancer. He was given six months t